An haifi Lorenzo Odone a ranar 29 ga Mayu 1978 zuwa Michaela da Augusto Odone. Ya zuwa lokacin da ya kai makaranta sai ya fara nuna alamun matsalolin matsalolin tare da tsarin sa. A shekara ta 6, a shekara ta 1984, an gano shi tare da yarinya na adrenoleukodystrophy (ALD) , ƙwayar cuta na myelin ci gaba mai ma'ana, ma'anar cewa myelin, "rufi" kewaye da jijiyoyi, ya rushe lokaci.
A cikin batun Lorenzo, an kwashe jijiyoyi a cikin kwakwalwa. Yawancin lokaci, yara da wannan cuta sun zama cikakku a cikin watanni 6 zuwa 2 da suka mutu a wani lokaci bayan.
Bincika don Cure
Michaela da Augusto, wanda aka gano ta Lorenzo, sun yanke shawarar binciken ALD ko da yake ba su da kimiyya ko likita. Sun fahimci cewa ALD ya bar jiki bai iya rushe manyan kwayoyin mai ba, ko dai kwayoyin jiki ne ke yin kansa ko wadanda suka shiga jikin ta hanyar abinci. Bayan aiki da yawa, sun taimaka wajen samar da man fetur da aka yi daga zaitun da zazzagewa, wanda suka kira " Oil Lorenzo's Oil ". Man fetur, idan ya fara samin yara tare da ALD amma ba alamar cututtuka, yanzu an san cewa yana da amfani wajen hana nauyin ALD da Lorenzo ya samu.
Fiye da Bidiyo akan Odones
A cikin darektan 1992, George Miller ya juya labarin Odones da gwagwarmaya don neman maganin ALD a cikin fim din, "Lorenzo's Oil" tare da Susan Sarandon da Nick Nolte.
Sarandon ta sami dan takarar Oscar ga Best Actress domin matsayinta na Michaela Odone.
Lorenzo's Life da cuta
Abin takaici, Lorenzo ya zama barci kuma ya kasa iya sadarwa ta lokacin da yake da shekaru 7. Nurses da iyayensa suka kula da shi 24 hours a rana. An magance shi da Oil Lorenzo duk da cewa cutar ta riga ta ci gaba.
Ya rasu a ranar 30 ga Mayu, 2008, wata rana bayan ranar haihuwarsa ta 30. Dukansu mahaifinsa Augusto da abokinsa na tsawon lokaci Oumouri Hassane sun kasance a gefensa lokacin da ya tafi. (Mahaifiyarsa ta rasu daga ciwon huhu a cikin shekara ta 2002.)
Source:
> "Lorenzo Odone." Shirin Myelin. 04 Mar 2009