Koyi game da Sarkar ALD da Lorenzo Odone ya karfafa
Lorenzo ta man fetur ne magani wanda ya inganta don adrenoleukodystrophy na yara (ALD) , rashin lafiya mai yawan gaske da kuma yawancin ciwon zuciya na myelin. Shekaru da dama, magani ya sami yabo sosai saboda godiyar kimiyya mai ci gaba, aikin Myelin, da kuma fim na 1992, Lorenzo's Oil.
An Gabatarwa ga Adrenoleukodystrophy (ALD)
Adrenoleukodystrophy (ALD) wani cututtukan cututtuka ne da ke haifar da gina hakar mai fatal mai tsawo wanda ya hallaka myelin, murfin kare akan ƙananan kwakwalwa a kwakwalwa.
Idan ba tare da wadannan murfin ba, maganin cututtuka irin wannan makanta, kururuwa, kamala, hasara na kulawa da tsoka, da kuma ciwo na ci gaba zai iya faruwa.
Kwayoyin cututtukan ALD sun bayyana a tsakanin shekaru hudu da goma. Cutar ta ci gaba da sauri kuma yawanci shine m cikin shekaru biyu zuwa biyar na bayyanar cutar a farkon. Saboda hanyar ALD da aka gada, ta hanyar X chromosome, yanayin da ya fi tsanani a yanayin yana shafi kawai yara. Har ila yau, abin ya shafa ne, wanda aka sani da cutar Addison, a kashi 90 cikin 100 na lokuta.
Menene Oil na Lorenzo?
A cewar The Myelin Project, Lorenzo Oil shi ne hade da wani 4 zuwa 1 hade na fatcic acid da acid naicic, cire daga man fetur da man zaitun, bi da bi. Hanyoyin mai, idan sun fara samuwa da yara maza da ALD, ko kuma yara maza da basu riga sun nuna alamun wariyar launin fata ba, an tabbatar da su rage yawan adadin mai amfani mai tsawo lokacin da ake amfani da shi yau da kullum, wanda zai iya jinkirta farawar cutar.
Duk da haka, binciken bai iya nuna cewa man yana dakatar da ciwon ciwon ba, kuma an san cewa ba ya juya baya ko gyaran myelin. Mafi kyawun magani a halin yanzu ana samuwa ga ALD shine ƙuƙwalwar karɓin ƙasusuwan yayin da yake damuwa. Duk da haka, ƙwayar launuka na kasuwa suna da matukar damuwa ga matasa marasa lafiya saboda hadarin kamuwa da kamuwa da cuta da kin amincewa.
Yaro wanda Ya Rarraba Jiyya
Ana kiran wannan magani "manzo Lorenzo" bayan Lorenzo Odone, wani yaro tare da ALD wanda iyayenta, Michaela da Augusto, sun ki yarda cewa babu magani ga ALD kuma Lorenzo zai mutu jim kadan bayan ganowarsa a shekarar 1984. Ta hanyar bincike mai zurfi da jurewa , Iyayen Lorenzo sun taimaka wajen inganta man fetur.
Bayan shan man fetur a kowace rana tun lokacin da ya ci gaba, Lorenzo ya ƙare bayan farfado da likitoci fiye da shekaru 20. Ya mutu wata rana bayan ranar haihuwarsa ta 30 daga matsalolin ciwon huhu. Labarin iyali ya shahara a cikin fim din 1992, Lorenzo's Oil , tare da Susan Sarandon da Nick Nolte.
Samun Lorenzo na Oil
A halin yanzu ana samun man fetur na Lorenzo ne kawai ga marasa lafiya a Amurka wanda aka sanya su cikin gwajin gwaji yayin da ake daukar nauyin kwayar magani. Ma'aikatar Abincin da Drug ta Amurka (FDA) ba ta yarda da man fetur ba don sayar da man. Wannan ya ce, wasu asusu na iya ɗaukar nauyin gwajin gwaji. Man fetur ya hada da kamfanin Croda International na Birtaniya da SHS International. SHS International shi ne mai rarraba duniya na man fetur.
Abubuwan da ke Bincike don Ƙarin Karatu
Kana so ka kara koyo game da ALD, Lorenzo Odone, da sauran cututtukan kwayoyin cututtuka?
Nemi karin takardu a nan:
- Ƙarin Game da ALD da Lorenzo Odone
- Ƙari ƙwayoyin cututtukan da ke shafi maza
Source:
"Bayani Game da Kamfanin Lorenzo." Shirin Myelin. 13 Feb 2009