Fibromyalgia yana da hanyar da za ta biyo bayan bincike, jiyya , bincike da kuma sanin jama'a. Duk da yake cibiyoyin bincike, na jama'a da na masu zaman kansu, suna da matukar muhimmanci ga ci gabanmu, ba wai kawai 'yan wasa ne a filin ba.
Kungiyoyi masu zaman kansu suna aiki tukuru a bayan al'amuran da kuma a gaban jama'a don ci gaba da bincike da fahimta. Manufofinsu masu mahimmanci shine don taimakawa mu duka tare da wannan matsala da damuwa don jagoranci rayuwa mafi kyau. Yawancin kyautar fibromyalgia mafi girma a Amurka da sauran mutane daga ko'ina cikin duniya an jera su a nan don ku sami ƙarin bayani game da waɗannan kungiyoyi masu muhimmanci da kuma aikin da suke yi a madadinmu.
Ƙungiyar Fibromyalgia ta kasa
Ƙungiyar Fibromyalgia ta Ƙasar (NFA) ita ce mafi kyaun fibromyalgia sadaka a Amurka. Ya kasance babban karfi a bayan watan Mayu na 12 da ake kira fibromyalgia ranar da ke kusa da kasar har tsawon shekaru 20. Har ila yau, an wallafa mujallar Fibromyalgia AWARE da kuma tattara tarurruka.
Bisa ga shafin yanar gizon na NFA, kungiyar ta "taimakawa canza dabi'un da fahimtar abin da yake son zama tare da FM." Tashar yanar gizon ta samar da dukiya game da yanayin da kuma ci gaba da ilimin likita na likita da sauran masu kula da lafiyar da ke bi da fibromyalgia.
Muhimman bayanai game da NFA:
- An kafa: 1997
- Matsayin ƙaunar: 501 (c) 3 ba riba
- Location: Orange, California
Abubuwa a gare ku:
- Membobin kungiya na musamman sun hada da eNewsletters, gabatarwar ilimi a kan layi, sabuntawa game da bincike, bayani game da nazarin neman masu halartar, da kuma rangwame akan wasu abubuwa a cikin kantin yanar gizo ta NFA.
Hanyar taimakawa:
- Ku ba kuɗi ta hanyar PayPal
- Saya kayan ilimi da samfurori a cikin kantin sayar da layi
- Ƙirƙiri kuɗi
- Taimako tare da ƙididdigar kuɗi da ƙwarewa, ciki har da Giving Talata Talata da kuma abubuwan da suka faru a rana
- Zaɓi NFA a Amazon Smile
Fibromyalgia Coalition International
A shafin yanar gizonta, Fibromyalgia Coalition International (FCI) ta ce yana so ya kasance "bege na bege ga miliyoyin mutane FM / CFS a duniya." Yana tattara tarurruka da sauran abubuwan ilimi a yankin Kansas City kuma ya ba da hankali na musamman ga hanyoyin da ba magani ba, irin su cin abinci, wanda aka gudanar da bincike na likita.
Muhimman bayanai akan FCI:
- An kafa: 2000
- Matsayin ƙaunar: 501 (c) 3 ba riba
- Location: Ofishin Jakadancin, Kansas
Bayanin Jakadancin:
Manufar FCI ita ce ta ba da bege ga duk wanda ke shan wahala tare da Fibromyalgia da ƙananan cututtuka ta hanyar bincike mai zurfi da bayar da rahoto game da cututtukan halitta, tabbatarwa, da kuma tasiri wanda ke mayar da hankali ga tushen tushen.
Abubuwa a gare ku:
- Rubutun kungiyoyin tallafin fibromyalgia
- Rajista na masu samar da kiwon lafiya na fibromyalgia
Hanyar taimakawa:
- Samun littattafai, CDs, da kuma samfurori na sanarwa ta hanyar kantin yanar gizo
- Ɗaya daga cikin lokuta ko gudummawar kuɗi mai gudana
- Ginin Gida
- Zaɓi FCI a Amazon Smile
Ƙungiyar Fibromyalgia & Fiji na Gida
Ƙungiyar ta Fibromyalgia & Chronic Pain (NFMCPA) ta ce manufarta ita ce bunkasa ganewar asali, bincike binciken kimiyya don maganin lafiya, da kuma sauƙaƙe bincike cikin dacewa, mai sauki, da kuma tsabar kudi ga fibromyalgia. Yana shirya da kuma inganta abubuwan da ke faruwa a ranar 12 ga watan Mayu kuma yana ba da bango da bango da kuma ƙaddamarwa a kan shafin yanar gizon.
Bayanai masu sauri kan NFMCPA:
- An kafa: 2008 (a matsayin CURE FM, ya zama NFMCPA a 2010)
- Matsayin ƙaunar: 501 (c) 3 ba riba
- Location: Logan, Utah
Bayanin Jakadancin:
Ƙungiyar ta Fibromyalgia & Chronic Pain ta hada da marasa lafiya, masu tsara manufofi, da kiwon lafiya, likitoci, da kuma masana kimiyya don canza rayuwar ta hanyar taimakon hangen nesa, shawarwari, bincike, da ilimin fibromyalgia da ciwo mai tsanani. Har ila yau, yana bayar da wata takarda kan sababbin bincike da bayar da shawarwari.
Abubuwa a gare ku:
- Jerin albarkatun akan nakasa da matsalolin aiki
- Jerin albarkatun don al'amurran dattawa
- Lissafin kayan kudi don rashin lafiyar lokaci
- Articulos a Espanol
Hanyar taimakawa:
- Ku ba kuɗi
- Saya t-shirts ko kaya daga shagon yanar gizo
- Zaɓi NFMCPA a kan Murmushi na Amazon
National Fibromyalgia Partnership, Inc.
Manufar Ƙungiyar Fibromyalgia ta kasa (NFP) ita ce ta ba da bayanin da kuma fahimtar fibromyalgia da kuma haɗiyar mutane tare da wannan yanayin ga shari'a, kudi, da sauran kayan taimako. Yana wallafa wata jarida ta kwata da ake kira Fibromyalgia Frontiers kuma yana bayarwa bayani game da binciken da ke neman mahalarta.
Mahimman bayani akan NFP:
- An kafa: 1992
- Matsayin ƙaunar: 501 (c) 3 ba riba
- Location: Linden, Virginia
Bayanin Jakadancin:
Don yin cikakkiyar lafiyar lafiya, bayani mai kyau game da fibromyalgia samuwa ga membobinmu, masu aikin kiwon lafiya, da kuma al'umma-a-manyan.
Abubuwa a gare ku:
- Bayani game da ciwon ciwo na yaduwar cutar (yanayin da ke shafewa)
- Bayani game da ayyukan kudi da zamantakewa
- Jerin albarkatun ga maza da yara da fibromyalgia
- Articulos a Espanol
Ƙungiyar Balance ta Amirka
Ƙungiyar Ciniki na Yanayi ta Amirka (ACPA) tana ba da tallafi ga 'yan uwansu da kuma ilimin ilimin maganin ciwo ga mutanen da ke fama da ciwo, iyali da abokai, da kuma ma'aikatan kiwon lafiya. Ya taimaka wajen kafa ƙungiyoyi masu goyon bayan ACPA da yawa a Amurka, Kanada, Birtaniya, da wasu ƙasashe.
Yayinda yake ba da wani tsari ne na fibromyalgia ba, mutanen da ke da fibromyalgia zasu iya amfana daga kungiyoyin tallafi, bayanai, da shawarwari da suke bayarwa. Har ila yau, yana da wata takarda mai suna The Chronicle.
Muhimman bayanai game da ACPA:
- An kafa: 1980
- Matsayin ƙaunar: 501 (c) 3 ba riba
- Location: Pittsburgh, Pennsylvania
Abubuwa a gare ku:
- Jerin sunayen kungiyoyin tallafin jin zafi na kullum
- Fara ƙungiyar talla a yankinku
- Bayani game da yawancin ciwo, jiyya, da kayan aiki mai zafi
Hanyar taimakawa:
- Ku ba kuɗi ta hanyar PayPal
Ƙungiyoyin Ƙasa
A waje da Amurka, ƙungiyoyin masu sadaka da yawa suna aiki tukuru don inganta rayuwar mutane da wannan yanayin. Wasu daga cikinsu sune:
- Ƙungiyar Ƙasa ta Myopain
- Ƙungiyar Turai na Fibromyalgia Associations
- Ƙaddamar da labarun ƙwayoyin cuta ta La Cigarci (Spain)
- AFIBROM (Spain)
- Fibromyalgia Action Birtaniya
Kalma Daga
Ga wadanda suka iya bayar da gudunmawa, za ka iya samun mai karɓa mai karɓa na karimci. Ga wadanda ba za su iya ba, watakila za ka iya samun wasu hanyoyi don taimaka ko inganta waɗannan kungiyoyi. Duk da haka, ƙila za ku iya samun damar amfani da su daga bayanan da kuma ayyuka da suke samarwa, baya ga abin da muke da shi na kai tsaye daga kokarin su.
Bugu da ƙari, abubuwan taimako ga ƙungiyoyi masu ƙauna kamar waɗannan zasu iya yin kyauta mai yawa ga mutanen da ke cikin rayuwarku wanda ke da rashin lafiya ko kuma zai iya zama wata hanyar tunawa da wani wanda ya yi fama da fibromyalgia a rayuwarsu. Zaka kuma iya rubuta gudummawar sadaka a cikin nufinka. Amma kafin a ba da gudummawa zuwa wata ƙungiya mai sadaka, tabbatar da binciken shi don haka ka san ana amfani da kudin ku yadda kuke so.