Misalai na Fata - Rayuwa cikakke tare da Fibrosis
Shin akwai mutanen da suka iya rayuwa mai zurfi da ma'ana duk da cewa suna da ganewar asalin cystic fibrosis ? Ganin cewa mutane da yawa da ma shahararrun mutane sun rayu cikin rayuwarsu tare da cystic fibrosis na iya kawo bege ga waɗanda ke fama da cutar, da iyalansu, a yau.
Rayuwa tare da Fibrrosis na Cystic
Shekaru da suka wuce, samfurin cystic fibrosis (CF) wanda aka gano kusan kusan yana da muhimmanci sosai fiye da tsawon rai.
Yara da aka bincikar ba su da tsammanin za su rayu tsawon lokaci, har ma a cikin 'yan shekarun da suka wuce, yana da wuya ga yaro tare da CF su kai girma.
A yau, godiya ga maganin zamani da ingantaccen fahimtar cutar, mutane da CF na iya haifar da rayuwa mai mahimmanci.
Mutane masu daraja da fibrosis na Cystic
Wadannan sanannun mutane tare da cystic fibrosis sun wuce sama da bayan maganin su don tabbatar da cewa zaka iya haifar da cikakken rayuwa tare da CF.
1. Lisa Bentley
Lisa Bentley, wanda aka haife shi a shekarar 1968, shi ne triathlete na Kanada. An gano shi a cikin shekarunta ta 20, ta wuce tsawon rai na rai ga wadanda ke tare da CF, kuma suna ci gaba da rayuwa mai mahimmanci. Bentley ya jaddada muhimmancin tsananin biyan hankali ga tsarin kulawa da motsa jiki ga mutanen dake zaune tare da CF. Ta lashe gasar wasan kwaikwayo 11 na Ironman kuma tana daya daga cikin manyan 'yan wasa masu nasara.
Maimakon yin la'akari da yanayinta a matsayin abin damuwa, Bently ya rubuta a cikin wani shafi na watan Disamba na shekara ta 2016, "wahala tana haifar da girma." Ya zuwa yanzu, har ya zuwa rawar da ta samu tare da wasu, ta ce, "duk lokacin da na yi tsere, na san cewa tseren na ya zama babban abin da zai sa iyalin su yi fatan 'ya'yansu da CF za su iya cimma irin wadannan abubuwa a rayuwarsu." Na gode, Lisa, don kawo mana bege.
2. Gunnar Esiason
Gunnar Esiason, wanda aka haife shi a shekarar 1991, shi ne dan tsohon dan wasan kwallon kafa na NFL Boomer Esiason da matarsa Cheryl. An gano Gunnar tare da cystic fibrosis lokacin da yake shekaru biyu. Abin mamaki, Boomer ya shiga cikin wayar da kan jama'a da kuma karɓar yakin basasa shekaru da yawa kafin a gano dansa.
Boomer shine wanda ya kafa kamfanin Boomer Esiason Foundation, wata kungiya mai zaman kanta wanda ke neman bunkasa bincike na CF da inganta rayuwar mutane da cystic fibrosis. Gunnar ya kammala karatun digirinsa a Makarantar Boston da kuma horar da 'yan wasan makaranta a Long Island, New York.
3. Nolan Gottlieb
Nolan Gottlieb, tsohon kwando na kwando da kuma mataimakin kwando a Jami'ar Anderson a South Carolina da aka haife shi a shekarar 1982, an gano shi tare da cystic fibrosis lokacin da yake yaro. Ya yi fama da rashin talauci lokacin da yake yaro, amma ya yi nasara bayan ya sami kwandon abinci mai ciki a ciki. Kwallon kwando na 6'1 "ya zura kwallaye a wasan kwallon kwando na Anderson. Kamar sauran 'yan wasa tare da cystic fibrosis, Gottlieb ya karfafa muhimmancin aikin jiki ga mutanen da ke da CF kuma suna fatan cewa labarinsa zai taimaka wa sauran matasa da ke fama da cutar don biyan bukatunsu.
4. James Fraser Brown
James Fraser Brown, wanda aka haifa a shekara ta 2006 shi ne dan Firayim Ministan Birtaniya Gordon Brown, kuma an gano shi tare da cystic fibrosis saboda sakamakon jarrabawar jariri na yau da kullum. Sakamakon ganewar asirin ya zama abin mamaki ga Browns, wanda bai san cewa suna dauke da cutar ba. Labarinsa shine shaida akan amfanar jarrabawar jariri don cystic fibrosis .
Tare da jarrabawar jariri, za a fara fara maganin nan da nan maimakon jira ga alamu da bayyanar cututtuka na cystic fibrosis irin su rashin abinci ko gina jiki. Yana da muhimmanci a lura cewa jarrabawar da aka yi akan jariri ne jarrabawa kawai; Ana buƙatar ƙarin gwaji don jariran da suke gwada gwagwarmaya don sanin ko suna da cystic fibrosis ko a'a.
Alice Martineau
Alice Martineau dan wani dan Birtaniya ne. Ta kammala karatun digiri na farko daga King's College a London kuma yana da kyakkyawan samfurin da kuma aikin kida. Martineau ya rubuta kuma ya yi magana sau da yawa game da yanayinta kuma tana jira sau uku (zuciya, hanta, da huhu).
Ta mutu a shekara ta 2003 daga matsalolin da suka shafi CF yayin da ta kasance 30. Abin godiya, ko da a cikin gajeren lokaci daga mutuwar har zuwa yanzu, an samu cigaba mai mahimmanci a maganin cystic fibrosis.
6. Gargajiya Flores
Travis Flores, wanda aka haife shi a shekara ta 1991 kuma aka gano shi tare da CF lokacin da yake da wata huɗu, ya rubuta littafin yara wanda ake kira "The Spider Who Never Up Up" tare da taimakon Fasahar Make-A-Wish . Ya yi amfani da wani ɓangare na tallace-tallace daga littafinsa don bayar da gudunmawa ga Foundation da kuma kungiyoyin CF da bincike. Ya taso sama da dala miliyan daya don Cibiyar Fibrosis ta Cystic kuma mai magana da baki da mai magana da yawun kungiyar. Ya karbi BA a cikin Dokar daga Marymount Manhattan College da kuma Degree Degree daga Jami'ar New York (NYU) kuma a yanzu yana zaune a Los Angeles, California.
7. Nathan Charles
Nathan Charles, wanda aka haife shi a shekarar 1989, ya zama dan wasan kwallon kafar kwallon kafa daga Australia. An gano shi tare da CF lokacin da yake yaro. Doctors sun shaida wa iyalin Charles cewa ba zai rayu ba bayan haihuwar haihuwarsa. Kusan kusan shekaru biyu bayan haka, Charles yana taka leda kuma ya lashe gasar zakarun Turai. Ana tunanin shi ne kawai mutumin da ke tare da CF don yin wasa a wasanni. Charles yanzu yana aiki ne a matsayin jakada ga Cystic Fibrosis Australia.
Rayuwa tare da Fibrrosis na Cystic
Kamar yadda yake bayyane daga koyowar wadannan tsira da kuma magungunan kyamarar fibrosis, mutane da yawa yanzu suna iya zama rayayyu da sanannun rayuka tare da cutar. Akwai mutane da yawa wadanda, ko da yake ba shahararrun ba, suna rayuwa ne masu mahimmanci ta hanyar godiya saboda gagarumin ci gaban da aka samu a cikin shekarun da suka wuce. A halin yanzu, yanayin rai na cutar ya kusa da shekaru 40, tare da bege cewa cigaba da ingantawa zai kara yawan wannan cigaba.
A cikin karatun game da waɗannan mutane, shin kuna mamakin abin da zai zama kamar rayuwa tare da cystic fibrosis? Bincika labarin Zoe - yarinyar da ke zaune tare da CF.
Sources:
Ƙungiyar Ma'aikatar Medicine ta Amurka. Medline Plus. Cystic Fibrosis. Updated 02/15/16. https://medlineplus.gov/ency/article/000107.htm