Tsayawa abubuwan da ke gudana a hankali
Cystic fibrosis wata cuta ce wadda babu magani da aka sani. Makasudin maganin shi ne magance bayyanar cututtuka, jinkirin ci gaba da cutar, hana rikitarwa, kuma hakan ya kara yawan rayuwa ga mai haƙuri na CF.
Ƙungiyar Tafiya
Nazarin ya nuna cewa sakamakon zai fi dacewa yayin da marasa lafiya na cystic fibrosis suka karbi magani ta hanyar ƙungiyar kwararren horar da malamai a cikin ɗaya daga cikin wuraren 115 na CF a duk fadin Amurka.
Ƙungiyoyin membobin CF sun haɗa da:
- Doctors
- Nurses
- Nutritionists
- Ma'aikata
- Masu kwantar da hankali na jiki
- Magunguna masu kwantar da hankali
- Psychologists
- Pharmacists
Magunguna
Mutanen da ke da cystic fibrosis zasu dauki magunguna don sauran rayuwar su. Wasu daga magungunan magungunan sune:
Magunguna masu maganin rigakafi: An yi don hana ko warkar da kamuwa da cuta. Wani lokaci ana maganin maganin rigakafi , kuma wani lokaci suna da ruwa wanda ke shafewa da inhaled ta amfani da na'urar da ake kira nebulizer.
Anti-inflammatory: Wani anti-inflammatory ne magani da rage rage fuska da kumburi. Za a iya yin amfani da kwayoyi masu kare ƙwayoyin ƙwayoyin cuta ga marasa lafiya na CF don rage ƙumburi a cikin huhu da kuma numfashi na numfashi.
Cikakken kwayoyi iri ɗaya ne na miyagun ƙwayoyi, amma ba'a amfani dashi da yawa a magani na CF ba saboda suna iya haifar da ciwon sukari ko matsaloli tare da kodan da kasusuwa. Kwayoyin anti-inflammatory marasa ciwon steroidal (NSAIDs), irin su ibuprofen, sun fi dacewa a cikin maganin CF.
Enzymes: Daya daga cikin matsalolin da CF ke haifarwa shi ne cewa ɓoyewar ɓoye a cikin pancreas ya hana shi daga barin sassan enzymes jiki yana buƙatar sarrafa abinci. Idan ba abinci ba ne, jiki bazai iya shafan duk wani abinci ba. Mutane da CF suna buƙatar ɗaukar kwayoyi wanda ya ƙunshi mahimmancin enzymes kafin kowane cin abinci.
Mucolytics: Mucolytics ne magunguna da ke taimakawa ga ƙananan ƙwayoyin cuta kuma ya sa ya fi sauƙi ga tari. Ana ba da umurni ga marasa lafiya na cystic fibrosis don taimaka musu su kawar da hanyoyi na kullun, ƙwaƙwalwar ƙwaƙwalwa da ƙananan kamfanonin CF. Wasu lokuta ana daukar nauyin ƙuttura da baki kuma a wani lokacin ana amfani da su ne ta hanyar amfani da nebulizer.
Airway Clearance
Wani muhimmin ɓangare na maganin cutar fibrosis shine amfani da wasu fasahohi da dama don taimakawa wajen cirewa da kuma cire ƙuduri. Cystic fibrosis marasa lafiya dole ne wannan farka sau da yawa a rana. Wannan farfadowa zai ƙunshi ɗaya ko fiye daga cikin wadannan dabaru:
Chest Physical Therapy (CPT): Wannan farfadowa yana amfani da wata fasaha da ake kira ƙaddarar da ta ƙunshi ƙuƙwalwa ta hannayen hannu-a yankunan da ke cikin kirji. Tare da sababbin marasa lafiya na CF, mai kwantar da hankali ko kuma likita zai yi CPT amma iyaye za su koya yadda za suyi haka domin su iya maganin farfadowa a gida. Wani lokuta na CPT yana da kimanin minti 30 kuma yana bukatar a yi har sau hudu a kowace rana.
Faɗakarwa: Wani fasaha wanda wani lokaci yana tare da ƙaddarawa a yayin CPT shi ne vibration. Ana yin wannan kuma tare da hannayensu, amma kamar yadda sunan yana nuna, an yi amfani da motsiyar motsa jiki fiye da motsi.
Mahalli na gida: A lokacin CPT, an sanya mai haƙuri a matsayi wanda zai ba da damar nauyi don taimakawa ɓoyewar ɓoye yana gudana daga cikin huhu. Wannan shi ne sanannun malalewa.
Gudun Jigilar Hanya: Wani lokaci, maimakon CPT mai amfani, ana amfani da na'urar da aka kira da kyautar jirgin sama. Jigon ya farfasa kuma ya kware hanzari don cire sakonni ta hanyar motsa jiki. Amfanin amfani da kayan ado shine wanda zai iya yin farfadowa ba tare da taimakon ba, kuma zaman karshe shine kimanin minti 20.
Mai amfani da fassarar: Har ila yau an san shi azaman valve, wannan ƙananan na'urorin hannu yana kama da wanda yake mai sihiri.
Mai haƙuri yana sanya bakin cikin bakinsa da kuma motsa jiki da karfi. Na'urar yana amfani da iska mai tsawa don ƙirƙirar vibrations na kirji.
Abinci
Mutanen da ke dauke da kyarin fibrosis ba sa shayar da abubuwan gina jiki yadda ya kamata daga abincin da suke ci, kuma aikin numfashi yana sa su ƙona karin adadin kuzari. Wannan nau'i na biyu yana haifar da rashin abinci mai gina jiki da rashin ci gaba. Don magance matsalolin abinci mai gina jiki, marasa lafiya na CF sun buƙatar adadin kuzari 50% fiye da sauran mutane shekarun su. Nutritionists ƙirƙirar dijital abinci da tsare-tsaren da aka tsara don bukatun kowane haƙuri, amma yawanci, mutanen da cystic fibrosis iya sa ran:
- Ku ci abinci guda uku da abinci 2-3 a kowace rana
- Cin abinci mai girma a furotin da mai
- Abincin da ke sha ya girgiza sau ɗaya ko sau biyu a rana
- Ɗaukar karin bitamin, musamman bitamin A, D, E, da K, waɗanda ba a adana su da kyau a cikin mutane tare da CF.
Aiki
Ayyukan jiki na da gajerun gajeren lokaci da kuma amfani na dindindin ga mutanen da ke da cystic fibrosis. Amfanin nan da nan shine cewa motsin motsa jiki ya fi iska ta cikin huhu kuma yana taimakawa wajen janye ƙuri'a. Amfanin amfani na tsawon lokaci shine ya taimaka wajen inganta lafiyar zuciya da kuma juriya, wanda zai ba jiki damar ƙarfafawa don yaki da sakamakon CF.
Tsuntsu mai layi
Lokacin da cystic fibrosis ya cigaba da haifar da lalacewa mai tsanani, ƙwayar kututturewa na iya zama wani zaɓi na zafin jiki ga mutanen da suka cika ka'idodin. Duk da yake dashi ba shi ne wani zaɓi ga kowa ba, ya tabbatar da cewa ya kasance mai nasara ga marasa lafiya CF. Fiye da mutane 1600 tare da cystic fibrosis sun karbi tsire-tsire, kuma rabin su sun tsira har tsawon shekaru biyar bayan sun karbi sabon kwayar cutar.
Sources:
Bilton, D. (2008). Cystic fibrosis. Magunguna. 36, 273 - 278.
Pitts, J., Flack, J., & Goodfellow, J. (2008). Inganta abinci mai gina jiki a cikin tsinkar cuta ta fibrosis. Jaridar lafiyar lafiyar yara. 22, 137-140.