Sanin abin da ke sa ran zai taimake ka ka shirya
Idan an gano ku kwanan nan tare da amyotrophic lateral sclerosis (ALS) ko kuma sauran ƙwayoyin cutar neuron, kuna iya samun wasu tambayoyi da damuwa game da makomar ku. Duk da haka, babu magani ga wadannan cututtuka. Amma wannan ba yana nufin ba za ku iya samun taimako ba. Akwai wadataccen albarkatun da ke akwai, wanda zai sa ku zama mai dadi kamar yadda zai yiwu, da sauransu waɗanda zasu iya rinjayar tsawon lokacin da kuke iya rayuwa.
Ciyar a ALS
ALS tana ɗaukar mutane da ƙarfin da za a motsa. Tun da yake abinci mai gina jiki yana da mahimmanci don ci gaba da ƙarfafa, yana da sauki a tunanin yadda abinci mai gina jiki zai kasance ga wanda ke shan wahala daga ALS. Amma cin abinci ba sau da sauƙi ba, musamman a cikin matakan ci gaba da cutar. Jigun da suke taimakawa wajen haɗuwa bazai yi aiki ba. Rashin ikon maganin idan abincin ya ci gaba da ɓacin tubata ba zai yiwu ba. A sakamakon haka, yana da mahimmanci don tabbatar da cewa babu alamu na girgiza yayin cin abinci.
A wasu lokuta, marasa lafiya tare da ALS zasu amfana daga gwagwarmayar da suka iya haɗuwa, irin su barium shafe nazarin . Zai yiwu kawai su iya cin abinci da kuma sha abincin da ruwa na wasu daidaito, kamar su abinci mai laushi ko tuddai. Daga ƙarshe, tube mai kwakwalwa na ƙarshe (PEG) zai zama wajibi don samar da matakai masu dacewa. Yayin da PEG zai iya inganta rayuwar zaman lafiya ta hanyar ƙara yawan abinci mai gina jiki, babu wani takamaiman bitamin ko ƙarin ƙarin an tabbatar da tasiri a taimakon tare da ALS.
Bugawa a cikin ALS
Ba buƙatar ku zama likita na kiwon lafiya ku gane cewa numfashi yana da mahimmanci, ko kuma yana daukan wasu jijiyoyi don numfashi. Yayin da ci gaba na ci gaba da ci gaba da ci gaba, Sakamakon aikin numfashi na iya zama mafi rikitarwa, har ma yana buƙatar ƙungiyar likitoci. Bugu da ƙari ga bunkasa yawan mutane tare da ALS, kulawa mai kyau na numfashi na iya kara ingantaccen makamashi, muhimmancin gaske, barci na rana, wahala da hankali, darajar barci, damuwa, da gajiya.
Saboda waɗannan dalilai, yana iya zama kyakkyawar ra'ayi don samun numfashinka yayi la'akari da wuri da kuma sau da yawa, koda kuwa ba ka ji cewa kana da matsala.
Taimako na numfashi na iya farawa da dare tare da hanyar samun iska mai ban sha'awa kamar CPAP ko BiPAP. Wadannan suna tallafawa filin jirgin sama kuma sun tabbatar da cewa ko da lokacin da jiki yafi hutawa, yana da isasshen isashshen oxygen kuma yana kashewa akan isasshen carbon dioxide. Yayin cigaban ci gaba na ALS, samun iska mai ban sha'awa ba zai yiwu ba a rana da rana. Daga ƙarshe, za ayi la'akari da hanyoyin da zazzabin rai irin su samun iska mai inganci . Wani zabin shine haɓakar diaphragmatic, wanda ke da ƙwayar tsohuwar ƙwayar ƙwayoyin jikin da aka ƙera da wutar lantarki don taimakawa wajen kwangila lokacin da motocin motar ba ta aika wannan saƙo ba. Duk waɗannan zaɓuɓɓuka sune mafi kyau tattauna tare da ƙungiya ciki har da wani neurologist, mai kwantar da hankali na numfashi, kuma mai yiwuwa ne magungunan kwalliya.
Kare Airway a ALS
Bugu da ƙari ga aikin fadada ƙwayoyin cuta, numfashi yana buƙatar cewa duk hanyoyi suna budewa, maimakon haɗuwa da mucous, ɓoye baki, ko abincin. Lokacin da muke da lafiya mun kiyaye kullunmu ta hanyar haɗiye akai-akai, da tari, da kuma yin numfashi na numfashi mai zurfi, duk ba tare da tunani ba.
Idan muna da rauni ga haɗiye ko tari sosai, ana buƙatar taimako don kare iska.
Yawancin fasahohi suna samuwa don taimakawa wajen buɗe huhu. Rashin barci tare da kai dan kadan yana iya taimakawa ɓoyewa daga barin ɓarna mara kyau a daren. Masu warkar da cututtuka na jiki zasu iya koya wa abokai da iyalin yadda zasu taimakawa tare da hannu don maganin su. Ƙarin fasaha mai zurfi na fasaha sun haɗa da lalata kayan aiki / mota (MIE), wanda ya haɗa da na'urar da sannu-sannu ya rushe ƙwayoyin, sa'an nan kuma yana hanzari canza matsa lamba don maganin tari. Wurin lantarki na ƙwanƙwirar mita (HFCWO) yana dauke da kayan ado wanda, lokacin da wani mai haƙuri ya sawa, ya taimaka ya karya mummunan a cikin huhu don ya iya saukewa sauƙi.
Yayin da aka rabu da rahoto game da tasiri na HFCWO, yawancin marasa lafiya suna jin cewa yana da taimako.
Wani ɓangare na kare iska ita ce rage yawan asirin da aka samu ta hanci da baki. Za su iya haifar da drooling, kuma su sanya masu haƙuri a kara yawan haɗari na numfasa waɗannan ɓoye a cikin huhu. Akwai magunguna daban-daban don taimakawa wajen sarrafa waɗannan ɓoye.
Shirya A gaba a ALS
Babu hanya a kusa da shi. Daga ƙarshe, duk muna mutuwa, kuma mutanen da ke tare da ALS sun mutu fiye da sauran. A lokacin da ake bukata da dama daga cikin zabin da suka fi dacewa a sama, mutanen da ke tare da ALS zasu sha wahala daga canje-canje masu ban mamaki da suka iya sadarwa. Wadansu za su sha wahala daga lalatacciyar cutar ta ALS, wasu kuma zasu rasa iko da bakinsu, harshe, da kuma muryoyi. A halin yanzu, masu sana'a na kiwon lafiya da ke kula da wannan mai haƙuri zasu buƙatar dogara ga maganganun da suka gabata game da abin da mai haƙuri zai so game da kulawarsu, ko kuma dogara ga mai yanke shawara.
A wace irin yanayi, idan akwai wani, shin kuna son yin nazarin rai tare da samun iska, yin amfani da tubes, da kuma sauran don dakatar? Wadannan yanke shawara ne na sirri, tare da ka'idodin shari'a, dabi'a, da kuma addini. Yana da mahimmanci don shirya gaba ta hanyar shirya rayuwar mai rai ko ikon lauya , domin ku kusanci ƙarshen rayuwa tare da mutunci da kuka cancanta.
Sources:
Miller, RG, et al. (2009). Yi amfani da sabuntawa na zamani: Kulawa da mai haƙuri tare da amyotrophic labaran sclerosis: Drug, nutritional, da kuma hanyoyin kwantar da hankula (wani bayanan shaida). Rahoton Tsarin Ɗaukaka Ƙwararren Cibiyar Kwalejin Nazarin Halittar Ƙasar Amirka, Bincike , 73 (15): 1218-26
Miller, RG, et al. (2009). Yi amfani da sabuntawa na zamani: Kulawa da mai haƙuri da amyotrophic lakaran sclerosis: Kulawa da magunguna, gudanar da alamun alamu, da rashin tausayi / halayyar halayyar (wani bayanan shaida). Rahoton Tsarin Ɗaukaka Ƙwararren Cibiyar Kwalejin Nazarin Halittar Ƙasar Amirka, Ƙwararraki, 73 (15): 1227-33.
Orla Hardiman, (2011). Gudanarwa na bayyanar cututtuka a cikin ALS. Journal of Neurology , 258 (3): 359-65.
DISCLAIMER: Bayanin ilimi a wannan shafin shine don dalilai na ilimi kawai. Bai kamata a yi amfani dashi don maye gurbin kulawa ta sirri daga likitan lasisi. Don Allah a ga likitan ku don ganewar asali da kuma maganin duk wani abu game da bayyanar cututtuka ko yanayin kiwon lafiya .